Welcome back! I’m currently on my holiday, but thought I’d take the time to squeeze in this update. I know that there are some of you still wondering why I am having a operation but first of all I thought I’d give you some back ground information.
If you have read “Operation MAGEC Rod” post then you will know that I have one growth rod in my back and I go to have this lengthened every three months . At my last appointment in June I told my Dr that I had been having a lot more pain and that the lumps at the bottom of my back seemed to be getting bigger. It was these lumps that have been giving me so much trouble because they are really sensitive and hurt to lean back on or lie on in bed!
Because of this he did a close up X-ray so that he could see the screws and rod better than the normal X-ray. It was after this that we discovered the metal rod in my back has broken, in quite an unexpected way. It is very unusual for the metal to break and more common for the magnetic moving bit to break. Because of this I have had to have another CT scan so that they can have an even better look at what has happened.
I have to go back again at the beginning of August but we do now know that the broken rod cannot be fixed and needs to be replaced, then also My Dr will try and put in a second rod on my left side. MAGEC rods are normally put in in twos but this couldn’t be done last time because I was just too small.
So now I have to wait for the operation, but if it helps and makes things feel better again then I don’t mind. My back has been very painful for a while now and Inahve to have lots of regular pain killers to help me. Even here on holiday, in fact I had to have a letter from my doctor to take my medicines through the airport there’s so much of it!!
Whats happened is a complete change of plan as I wasn’t meant to have another operation to take this rod out for another two years. But I am beginning to learn that nothing is straight forward with scoliosis (straight – ha ha!).
Below is a quick video version of this update plus a few shout outs and some photos of my X-rays and my back. Only look at those though if you’re not too squeamish! It does look quite painful, which it is but not as bad as it looks!
Thanks for reading – I’ll post again soon,